Returning Research Results

Wednesday, July 11, 2018

The issue of returning research results to participants is a key issue to consider when developing a genetics or genomics research protocol. With increasing engagement and awareness of patients and the public, both groups whom are recruited for studies, as well as the growing understanding of the clinical significance of personal genetic and genomic information, the issue continues to remain at the forefront of ethical debates and policy discussions. Most recently, a committee convened by the National Academies of Sciences, Engineering, and Medicine reviewed the literature and heard from researchers, bioethicists, patient advocates and others about the return of results. 

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